Patient resources
NHS Lothian MSK Self Help Resources Webpage
Definition
Typically presents as insidious onset shoulder pain and stiffness persisting more than 3 months. Characterised by fibrosis of the shoulder capsule. Can be either primary (idiopathic) or secondary. Previously known as adhesive capsulitis.
Typical signs and symptoms
Pain dominant stage: Progressive shoulder pain, particularly at night and with sudden or unexpected movements. Night pain can be a dominant feature. Pain can be diffuse although usually localised to shoulder and upper arm. Progressive global loss of active and passive movement of the shoulder in a capsular pattern.
Stiff dominant stage: pain typically improves while capsular stiffness persists, especially loss of passive external rotation. Can range from mild to severe restriction.
Prevalence and risk factors
Lifetime prevalence of frozen shoulder is estimated to be 2-5% general population (8.2% male & 10.1 % female of working age). Up to 60% of people with diabetes may develop a frozen shoulder. The opposite shoulder can become affected within 5 years in up to 20% of patients.
Risk factors: Metabolic and hormonal changes including: diabetes, stroke, thyroid disorders, shoulder injury/surgery, Dupuytren’s disease, primary neurological conditions e.g. Parkinson’s disease, cancer, cardiovascular disease, complex regional pain syndrome, smoking, obesity, autoimmune diseases, genetics (ethnicity and family history of frozen shoulder).
Prognosis/ risk factors for poor outcome
On average can take 2-4 years (mean 30 months) to reach a satisfactory recovery. Some cases can take longer with 10- 50% of patients reporting residual shoulder stiffness and disability up to 7 years.
Risks factors for poorer outcomes include diabetes, thyroid and metabolic disorders, inflammatory conditions, obesity, sleep deprivation, multi-site pain, previous pain episodes, anxiety and/or depression, adverse coping strategies, low social support, low self-efficacy, lifestyle factors e.g. smoking, alcohol, physical activity levels.
Other considerations
Rare in patients under 40 & over 70 years old.
Differential diagnoses
- glenohumeral joint osteoarthritis
- avascular necrosis
- malignancy (e.g., Pancoast tumour)
- subacromial pain/rotator cuff related shoulder pain
- shoulder dislocation
- fracture
- post stroke shoulder subluxation
- referred pain
Relevant standards and guidelines
BESS Patient Care Pathway: Frozen Shoulder
NICE Clinical Knowledge Summaries: Frozen Shoulder
P.A & M.A – 15-7-26
Who can refer:
- All primary care clinicians with relevant appropriate scope of practice i.e. GPs, Primary care MSK advanced practice physiotherapists, advanced nurse practitioners
- Patient self referral (resident of East Lothian HSCP, Edinburgh HSCP and West Lothian HSCP Where To Find Us – Musculoskeletal Physiotherapy)
- Secondary care consultants and associated teams
- MSK physiotherapists who identify patients with suspected serious conditions of the shoulder or elbow shoulder follow agreed pathways and processes NHS Lothian Integrated Shoulder & Elbow Service
Who and How to refer:
| Condition | Referral Type | Referral destination and process |
|---|---|---|
| Suspected septic arthritis/ septic bursitis | Same day | Orthopaedic registrar via Flow navigation centre on 03000 134000/ on call Orthopaedic registrar via switchboard 0131 242 1000 |
| Suspected facture or dislocation | Same day | Orthopaedic registrar via Flow navigation centre on 03000 134000/ on call Orthopaedic registrar via switchboard 0131 242 1000 |
| Suspected acute distal biceps rupture | Same day | Orthopaedic registrar via Flow navigation centre on 03000 134000/ on call Orthopaedic registrar via switchboard 0131 242 1000 |
| Suspected acute traumatic rotator cuff tear in the younger patient | Urgent | Orthopaedics via SCI gateway > Lauriston Buildings > Orthopaedics- Elbow & Shoulder |
| Suspected malignancy/ tumour specific to shoulder* | Urgent | Orthopaedics via SCI gateway > Lauriston Buildings > Orthopaedics- Elbow & Shoulder |
| Suspected inflammatory condition | Consider referral to Rheumatology – see RefHelp Rheumatology. | |
| Suspected neurological condition | Consider referral to Neurology – see RefHelp Neurology. |
* Please also see Sarcoma – RefHelp. If clinical assessment leads to a very strong suspicion of suspected underlying malignancy, with no specific localising signs or symptoms to suggest a specific underlying primary, consider recommendations and referral options detailed on GP Access to CT for Suspected Cancer (No Clinically Obvious Primary) – RefHelp
Who not to refer:
- Patients who have the presence of significant red flags/ suspicion of serious shoulder and elbow conditions or have suspected inflammatory condition – see serious shoulder & elbow conditions
- Age <16
For further information see associated sections
- Link to NHS Lothian patient internet site including patient information resources – https://services.nhslothian.scot/ISES/Pages/default.aspx
- Link to NHS Inform page shoulder problems https://www.nhsinform.scot/illnesses-and-conditions/muscle-bone-and-joints/self-management-advice/shoulder-problems
- Link to NHS Inform shoulder problems- Patient self help guide https://www.nhsinform.scot/self-help-guides/self-help-guide-shoulder-pain
- Link to NHS Inform page elbow problems https://www.nhsinform.scot/illnesses-and-conditions/muscle-bone-and-joints/self-management-advice/elbow-problems
- Link to intranet site NHS Lothian Integrated Shoulder and Elbow Service http://intranet.lothian.scot.nhs.uk/Directory/physiotherapy/NHSLIntegratedShoulderandElbowService/Pages/default.aspx












