The RHCYP Paediatric Gastroenterology, Hepatology and Nutrition (PGHAN) service provides specialist services for Lothian, Fife and the Borders as part of the South-East Scotland Regional PGHAN Network (SESPGHAN).
Further patient-accessible information is available on the RHCYP Children’s Hospital website. There is a GI department page with information
Patients who are already known to the paediatric GI service and under ongoing clinical follow-up (for example, IBD, liver, complex nutrition and coeliac patients) will all have contact numbers or email contact with their appropriate team members and should be encouraged to contact them for specific advice, if not felt appropriate for advice in primary care. Our RHCYP pages are also a good source of information on who to contact.
GI Consultants at RHCYP are:
- Professor Richard Russell
- Professor David Wilson
- Dr Peter Gillett
- Dr Paul Henderson
- Dr Victoria Merrick
- Dr David Mitchell
The service provides:
- Acute inpatient management and consultations
- Advice only (usually via SciStore or email) as an alternative to OPD visits
- Outpatient management
- GI rapid access new patient clinics (urgent referrals) – weekly on a Monday
- GI routine new patient clinics
- Sub-Specialist and General GI review clinics
- Endoscopy – diagnostic and therapeutic service
- Joint GI/ Paediatric surgery lists
- GI diagnostics (pH, pH impedance, high resolution manometry, capsule endoscopy) via RHCYP and RIE GI physiology services
- Sub-Specialist Gastroenterology clinics:
- Inflammatory Bowel Disease (IBD)
- Nutrition/Complex Nutrition
- Hepatology
- Coeliac disease
- Eosinophilic Oesophagitis
- IBD and Hepatology paediatric-to-adult transition (RIE, WGH and Fife)
- Quaternary Hepatology outreach (with Birmingham Hepatology Team)
- Outreach clinics in NHS Fife and NHS Borders
Contact Details
PLEASE NOTE THE EMAILS AND PHONE NUMBERS ARE FOR USE BY HEALTH CARE PROFESSIONALS OR EXISTING PATIENTS WHO WE ARE EXPECTING TO CONTACT US DIRECTLY AND NOT TO BE USED FOR SELF REFERRAL
Daytime Phone
- Weekdays, daytime (09:00 – 16:30) urgent advice is via the RHCYP Switchboard (0131 536 1000), bleep 9434 for the GI registrar
- Weekdays, daytime (08:30 – 15:30) a message can be left via our secretary on 0131 312 0430
Out of hours Phone
- On evenings and weekends the General Paediatric Acute Receiving Unit (PARU) team are available to discuss acute referrals and manage the GI inpatients along with the GI consultant of the week.
- Out of hours the main contact is via bleep 9424 for the resident Senior Registrar/ ST on call.
- There is an on-call PGHAN service that runs 24/7. The on-call consultant can be reached on 07890 388650
Other Methods of Contact
- GPs can seek advice via a SCI Gateway Referral
- Our administration email is PaediatricGIAdmin@nhslothian.scot.nhs.uk . This can be used for enquiries from healthcare professionals
Regional work and contacts
In addition to services at RHCYP we provide tertiary PGHAN support for hospitals in Lothian, Fife and the Borders.
New referrals should always be discussed and sent to the local DGH to be seen unless specific advice is required from our team.
Colleagues with a special interest in GI at these hospitals are:
- Dr Anna Dall, Consultant Paediatrician, Borders General Hospital, Melrose
- Dr Andy Mitra, Consultant Paediatrician, Victoria Hospital, Kirkcaldy
- Dr John Morrice, Consultant Paediatrician, Victoria Hospital, Kirkcaldy
- Dr Aniela Tybulewicz, Consultant Paediatrician, St John’s Hospital Livingston
- Dr Lois Biggerstaff, Consultant Paediatrician, RHCYP
- Dr Philippa Wood, Consultant Paediatrician, RHCYP
Other Scottish networks provide support for other regions:
New referrals should always be sent to the local DGH to be seen unless specific advice is required from our team. Any out of area referrals should come from the secondary care team
NoSPGHAN for North Scotland (Tayside, Grampian, Highland, Orkney and Shetland Isles)
WoSPGHAN for West Scotland (Greater Glasgow and Clyde, Ayrshire and Arran, Dumfries and Galloway, Forth Valley, Lanarkshire, Western Isles)
How to refer:
Edinburgh, East and Midlothian
Referrals should be sent via SCI Gateway
- Royal Hospital for Children and Young People >> Gastroenterology >> LI Basic Sign Referral
West Lothian
Referrals should be sent via SCI Gateway
- St John’s Hospital >> Paediatrics >> LI Basic Sign Referral
Regional Referrals
New referrals should always be discussed and sent to the local DGH to be seen unless specific advice is required from our team (see above for specific contacts).
Triage of Referrals
On receiving a referral, we will triage to urgent or routine, but may decide they are suitable for advice only (this may help expedite management) in which case we will triage to ‘advice only’. There are some cases where we will triage to other services who are felt to be more appropriate for ongoing advice or management (this may include specialist colleagues in general paediatrics, paediatric surgery, other medical or surgical specialist services, and paediatric dietetics) in which case we will inform you and the family.
Guidelines are available for many conditions and are listed below. These guidelines give advice regarding initiating first line investigations and treatment, if required, and may avoid the need for referral and certainly will expedite management.
In each guideline, there is information regarding when a referral would be appropriate – please see the resource section for more detail.
- Gastro-oesophageal reflux (GOR) and disease (GORD) – Gastro-oesophageal reflux.pdf (2011) MANAGEMENT GUIDELINES FOR PAEDIATRIC GASTROENTEROLOGY-Reflux Paediatric Proton Pump Inhibitor (20.06.19) Paediatric GI Domperidone letter advice and flowchart (20.06.19)
- CMPA – Cow’s Milk Protein intolerance.pdf (being revised Apr-May 2019)
- Constipation Constipation & urinary Incontinence (Refhelp -Paediatrics) Also see Guidelines for the management of idiopathic childhood constipation and Functional Constipation Guidance and Tough Going
- Calprotectin in children NHSL Sept 2018.pdf
- Conjugated Jaundice and Biliary Atresia (or other significant liver disease) in infancy Conjugated Jaundice & Biliary Atresia in infancy.pdf
- Lactose Intolerance Paediatric G.I Lactose Intolerance RHCYP AUG 2019.pdf Lactose free diet sheet (V.1 Aug 2019)
- Chronic diarrhoea, Acute and Chronic Bloody diarrhoea and potential IBD Chronic diarrhoea.pdf
- Coeliac Disease COELIAC DISEASE.pdf Gluten Challenge (2011)
NHS Inform Leaflets: Diet-advice-when-being-tested-for-coeliac-disease-gluten-challenge, Coeliac-disease, Living-well-with-coeliac-disease
- Helicobacter Pylori RHCYP 22 Aug 2019.pdf
- Mouth ulcers.pdf
- IBS – Recurrent Abdominal pain Functional Abdominal Pain.pdf
Current RHSYP Endoscopy information and leaflets:
- Your colonoscopy at the Royal Hospital for Children and Young People.pdf
- Your upper endoscopy test at the RHSYP.pdf
- Citramag – https://vimeo.com/436822438
- Picolax – https://vimeo.com/436823493
In development
- EOE
- Nausea and vomiting
- Chronic diarrhoea
- Bloody diarrhoea
- IBD
- Non-coeliac gluten / wheat sensitivity (NCGS/ NCWS)
- Jaundice in the neonatal period and older children
- Abnormal LFTs
- Obesity and the liver
- Endoscopy
Children’s organisations:
British Society for Paediatric Gastroenterology Hepatology and Nutrition(BSPGHAN) www.bspghan.org.uk
North American Society for Gastroenterology Hepatology and Nutrition (NASPGHAN) www.naspghan.org
European Society for Paediatric Hepatology and Nutrition (ESPGHAN) http://www.espghan.org/
Other helpful sites:
Children’s Digestive Health and Nutrition Foundation hhtps://gikids.org
Children’s Liver Disease Foundation www.childliverdisease.org
Crohn’s and Colitis UK CUK https://www.crohnsandcolitis.org.uk/
CICRA for children with crohns and colitis https://www.cicra.org/
Coeliac UK (CUK) www.coeliac.org.uk
NHS Inform Leaflets: Coeliac-disease & Living-well-with-coeliac-disease & Diet-advice-when-being-tested-for-coeliac-disease-gluten-challenge
ERIC (Children’s Bowel and Bladder Charity) http://www.eric.org.uk
GUTS UK https://gutscharity.org.uk/
Lothian Joint Formulary www.ljf.scot.nhs.uk
NHS Inform (Scottish Health on the web) https://www.nhsinform.scot/
Tough Going (pdf) NHS Lothian paediatric constipation guideline
Adult organisations:
BSG www.bsg.org.uk