Information
First Seizure Clinic
We see patients with suspected first seizure/new diagnosis of epilepsy within (ideally) two weeks of referral, in dedicated clinics run by neurologists with expertise in epilepsy. Please see Referral Guidelines section below.
Epilepsy service for people with Intellectual/Learning disabilities
This service is separate from neurology and run by Drs Pamela Martis and Jane Stuart (available via NHS Lothian email).
Epilepsy Nurse Specialist Service
epilepsynurseservice@nhslothian.scot.nhs.uk
This service is for people already under a neurologist with an established diagnosis of epilepsy
0131 312 0717 (voicemail)
M.A. & R.D. 14-11-24
First Seizure
Who to refer:
- Anyone in whom you suspect a possible first ever epileptic seizure or new diagnosis of epilepsy, and think would benefit from a specialist opinion regarding diagnosis, investigations and possible treatment.
- What tests should you do in advance: Ideally, FBC, urea and electrolytes, calcium, glucose, liver function tests and ECG
Who not to refer:
- Those who already have a diagnosis and you wish a further opinion regarding their condition. They should be referred via SCI Gateway (Neurology)
- Those who may not benefit from investigation or treatment (e.g. people with advanced dementia living in a care home). We are always happy to offer advice in such scenarios (Dr RJ Davenport or Prof Jon Stone via email)
Please use SCI-gateway at RIE >> Neurology >> First seizure clinic
How to Access the Clinics:
- Contact DCN OP via loth.wghdcnapptoffice@nhs.scot to request the next available First Seizure clinic appointment. Please ensure this appt is made known to the patient; the short lead time means that letters of appt will not be sent out.
- Send referral letter via Gateway (First seizure clinic) and include appt date/time.
- Remind patient to bring all prescription medications with them and ideally a witness (or witness be accessible by phone).
- Provide advice where applicable regarding driving (www.gov.uk)
Patients with established epilepsy may be referred via SCI Gateway and will be triaged appropriately.
- Neurology-First seizure letter ED May 2020.pdf
- Fitness to Drive (gov.uk)
- National Institute for Health and Care Excellence (NICE)
- Scottish Intercollegiate Guidelines Network (SIGN)
- Epilepsy Society – www.epilepsysociety.org.uk
- Epilepsy.org – www.epilepsy.org.uk
- Epilepsy Scotland – www.epilepsyscotland.org.uk